English community

Holy H.llhole...the poisons we ingest! Perforations in the bowel! Can I ask - being on paclitaxol - do you have any hair? or ...

I have been on that combo for 4 of my 4 1/2 years with cancer. But right now I am only on Taxol, since January. In January I ...

Becca: I'm so sorry for your diagnosis, but happy you were caught at stage 1. And although I'm not happy that you have the gene, ...

@Alwayslearning it's a long book but I did enjoy the story. I listen to audiobooks when I'm doing puzzles or scratch art in ...

Horsegirl, your thoughts about staying in the now (& enjoying the fact of being alive) is a great reminder for all of us. I catch ...

Dear Community, Just giving this post a little bump! This survey is still open and the research team is looking to hear ...

Teal Sisters, Yesterday was the official "first day of summer" yet we've already had some blasts of heat across the country. ...

@cmcc you can be as bold as to ask the CoD to walk you through the assessment process. This is not new to them. They should be ...

Hello, Has anyone dealt with Aromatase Inhibitor-Associated Musculoskeletal Syndrome (AIMSS), any tips? C

@Meinvan I appreciate and hear you! I know when the communication mobilization begins that you will be a strong member of ...

@beccavrieze I'm so glad you have signed up for the Teal Tea. It is another form of connection to people who 'get it'. I'm ...

@HorseGirl a wise perspective indeed. Also, I too miss @Strongwoman who was one of my initial connections on OVd 😔 I'm ...

Hi everyone, here is the link to the session 'Understanding biomarkers: what to know and what to ask'. This Speaker Series Session ...

Hi Becca, and welcome to OV Dialogue. You have come to the right place for support. When I was first diagnosed with OV cancer ...

Thank you both for your replies. I hear you and have the same worry about stress causing a reoccurrence. I'm hoping for the best ...

@beccavrieze , hello and welcome to this group. Glad to hear you have an appt with a geneticist, I'm hopeful they will be ...

Thanks @Alwayslearning , I too have come here several times to write something but can't seem to find the right words for ...

Hello Becca, I am glad you found us. This is a safe place to ask questions, get support, and learn from each other. There ...

@Alwayslearning Thank you so much! I really love that perspective, I am learning how to actively change my perspective in therapy, ...

Hi @beccavrieze and welcome to the forum. Thank you for sharing your story. Every cancer diagnosis is a punch in the gut. ...

Thanks for your support You are right How do these people sleep at night? Would be different if it was one of their loved ones! ...

@pat I'm so sorry to hear of your denial. I keep tearing up every time I hear stories such as yours. I keep trying to find ...

@BellaDonna1959 thank you for continuing to remind us about the 'human' stories impacted by these decisions. When OCC ...

@Meinvan my Mum lived in London and was evacuated to the countryside for the war. I can't even fathom what they went through. ...

Hi @MissERP ... I wake up about 3x a night to go to the bathroom. I have to stop drinking all liquids before 8pm otherwise ...

Thank you so much for your response, that is very helpful! I am starting to learn about meditation and mindfulness and I love ...

I also cannot have Elahere because it’s been denied. I was tested and was approved for it. How sad that these people play with ...

Wow when I read this I am incensed that Elahere is being denied to you. I have no idea if this is possible but could you start ...

Hi Becca, I haven't walked in your shoes exactly, but I have stage 3C inoperable high grade serous ovarian cancer, spread over ...

I have had platinum drugs fail me from the start - my tumors grew and spread. I was given a surgery date then woke up to learn ...

Hi everyone, My name is Becca and I was diagnosed with very rare Sertoli-Leydig ovarian cancer back in 2015 when I was only ...

@Alwayslearning , haha yes my mom was fixated on the Jewish children that moved into the mansion behind where she lived in ...

@Alwayslearning My sleep issues are on the list of things to mention to my oncologist this week. I can still fall asleep ...

Hi @andyro I saw you had started a post however I didn't see any text associated with it. I'm just reaching out to see if you ...

@MissERP sorry to hear of the tiredness. I completely understand the lack of sleep challenge. It's the one thing that has persisted ...

@brendalee thank you for sharing this information. As an 'attendee', will you receive a heads up on the paper that's being published? ...

@LeslieA there is indeed information about BioMarkers on the OCC's website. There's a video posted a few months ago and three ...

@Meinvan I'm glad you had a lovely trip back to Ontario. I can imagine it took a lot of personal strength to make the ...

@Meinvan I can honestly say that the traffic was the worse part!!!

@Meinvan definitely some sage advise in your post. Thank you for taking the time to share. @cmcc do you have additional questions ...

@LeslieA that is indeed the same drug they used with my father. I know it by the brand name (Invanz). He had amazing success ...

Thank you @StephOCC for the update. I have great confidence that when you make the "ask", this group is going to be there to ...

Interesting,I think there is valuable info in learning all we can about each of our dna/genetics for better more customizable ...

was watching it until now....I think im conference saturated. I want to go out for a walk! They will be producing a paper from ...

UPDATE Many members of our community have been asking what comes next following the recent news that negotiations for ...

Brendalee, that sounds very good. I am interested in learning more about this topic. I think there might also be something on ...

@LeslieA thank you. Yes I thought my visit with a different doctor was one time, but then she said she was happy to see me ...

@MissERP I hope your appt goes better for you. I know it's nice to have company at these appts, they can act as a distraction ...

Nice pictures @LeslieA thanks for sharing. I have been tired all this week, partially because I don't sleep very well anymore, ...