Yes, @annlaba the exhaustion part of it, is difficult and hard to find ways to overcome some of it. Some is accepting 'what is' and napping when you can. I am happy and grateful to hear that you have had some regression show in some of the lymph node size. It is hopeful in ways. Difficult to not let the hope get to high but positive news that I am thankful you shared with us. The other part of being in treatment is the length of time it takes to either have treatment or the lead up to it. It can be very exhausting and one plans around these times depending on how it leaves one feeling.
I am doing okay. I am more fatigued than normal and am slowly accepting it. I went with my son to a Specialist appt for himself on Thursday and there were stairs. They were hard! We have stairs going to the basement in the house and where laundry is, and I have been doing them but these seemed much more difficult. He is a good son and let me take his hand for descending the stairs. That outing was enough for me though. I think I came home, threw something on Netflix or something and started knitting. I don't eat the same food as they do anymore and find I am not all that interested either. So trying to find ways to get around that and create some things for them. I am slowly wrapping some of my legacy projects, with notes and cards. Yesterday I managed to do one. Still have quite a few to go but will get there. It's the notes that slow me down, depending on who it is for. They all look pretty when all wrapped though and that is good. Thanks for asking.
Keep us updated now and then. Take care <3