Hi Andrea
Welcome to our community. I''m always happy to meet new members but, at the same time, sad for the cause that connects us all.
I have experienced low platelet counts over the 6+ years I've been in treatment but not to the extent you have. Hopefully there are members out there who share your experience and will be helpful to you. But in the meantime, if you haven't already, input some of the key words about the condition into the search bar and if there have been any historical conversations on the topic they should pop up.
Good luck in your search and treatment.