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I know this is a difficult topic, and a scary one as well. Would anyone care to share their experience with recurrence: how did you find out, timeline, how you are dealing or have dealt with it, what treatment and/or surgery was prescribed for you, any advice you would share, etc. 

Hello,
I had my first recurrence in 2014, 18 months after chemo  treatment and debulking. I had to have 6 more chemo treatments. Eight months went by and my second recurrence occurred. Back for 6 more rounds of chemo. I started on olaparib in April 2016 and the cancer is currently stable. The chemo knocked me on my butt each time. 

I'm glad it's stable now @birdee   What is the olaparib for?

I had a recurrence in January 2017.  I had ascites develop and went to my GP.  I had a CT and found it had recurred.  Went for chemo and it is clear again.  Now monitoring.  Doing OK.

I had recurrence in May 2017 just 7 months after my front line treatment was done. It started in my lungs just like the first time. I was devastated that it came back. I have just finished 18 weeks of chemo with Carbo/taxol and my last CA125 was back down to 15 (was 2,000 in May). I'm booked for a CT scan in October and see my oncologist on Oct 30th to see if I'm NED again. How do you cope with the constant worry about recurrences? I feel that each recurrence is one step closer to my death. I am a very positive person and I really feel like I've beat this again but there are times when the worry gets the best of me.

I was diagnosed in April 2014 and had surgery,debulking and IP and IV chemo with carbo/taxol.A year later I was experiencing reflux and back pain.The Drs put me on Tamoxifen to see if it would stabilize.Six months later I started carbo/caelyx.Both chemos I did fairly well with mixed responses.and very little side effects.Seven months later I was on  chemo again! On Gemcitabine this time.This has been hard this time Everyone reacts differently.My mid treatment CT showed mixed response  again which gave me encouragement.Awaiting a followup appt.I am one of those people who needs to know exactly what is what.Something I find some Drs feel is not necessarily positive.A second reoccurance was hard to get my head around so soon after my first  but I will take any positive thing.After all this my symptoms of reoccurance have been the same ,usually indigestion,reflux and back ache.You have to be aware .

Thank you all for sharing. This recurrence is so hard to wrap your mind around. This has been the difficult thing for me also. I keep wondering how will I know... yoga, activities and doing what you can that makes you happy has helped keep the mind at ease. It is those times when the worry seeps in that are difficult. 

Hi Flowergirl. You will know when your CA 125 levels climb beyond normal. My Dr uses double the high normal (30) which is 60 as threshold for trouble and a CT scan confirms it. Symptoms follow- bowel changes are one marker.  Pain, gassy, constipation, narrower diameter stools. It depends on where tumours are growing and what organs they impact.  I have lung and liver tumours but no symptoms from them at all. Yoga changes over time is a good way to tell. You'll know if your twists etc make your tummy feel more bulkier, painful, etc. than usual. If you have a remission they  retreat it with chemo. 

Hello Flowergirl.  I definitely agree with Nanakaw.  Constipation is a big thing.  Not able to pass gas for very long is another.  My oncologist said way back make sure you can pass gas.  Walk! Sudden weight gain maybe.  A couple of pounds in a week say if you do not expect that.  I had ascites(fluid) build up with initial diagnosis and my recurrence so far.  

Thank you all for sharing - they don't track the CA125 and no diagnostics as routine monitoring so those are not markers for me; that in itself makes it hard to comprehend how will you know then. Awaiting followup so anxiety is through the roof. 
Familiar with ascites as I had that pre surgery and post chemo  - 2 times had paracentesis (fluid drain).
Need to put trust in your oncology team, write down all your questions in between appointments and monitor all the physical symptoms. 

 I was diagnosed in 2012.. Chemo and surgery. Monitored every 3 mths at first then 6 then yearly. I had no problems at all during this time... In Jan this year my CA125 was up.. Not a significant amount but I also had been experiencing some slight pain in my upper abdomen. Oncologist decided to send me for CT scan just to be safe. CT scan showed spot.. Surgery in July removed 5 nodules  same cancer as before. They got everything so no Chemo..  I have so much faith in my Oncologist and his team . Since my first diagnose I have really tried to stay healthy .. Eat the right food, exercise Listen to my body.. I believe it has helped and that maybe it may have been worse if I had not been doing this.Going back to work again in one week..... Yes it can make your life really miserable if you let it.. Can it return again.. Maybe  but maybe not... I almost got hit by a crazy driver doing over a 100k a couple of weeks ago.!!!!  So I will not let it control my life. I will live day to day and be thankful for every one I get. Of course I have my bad days and it is very easy to get paranoid but I will keep fighting  for me, my Family and for all of us... Sites like this are great because it lets us know we are not alone .. 

@irishsurvivor I just passed the 1 year anniversary of my surgery and October 17 will be 1 year since I was told I had cancer. I have been cancer free since (no chemo) but have an ultrasound coming up in a few days and I am scared sh*tless to say the least. Part of me is saying chill out girl but yet I'm hyper aware that even though I have been given a good prognosis, recurrence is always a possibility. Trying to let cancer not rule your life is an uphill battle and at times it is worse than others. You seem to have a great attitude towards life in general which is great to see! I love this community you all are very honest, compassionate and supportive, and reading about everyone's ups and downs in their journeys gives me hope that if a recurrence is in my future I can get through it too!

 Hang in there terrylee.. Yes it is a battle but one we can and will win.... It is scary going for appointments and scans but try and stay positive. I had one person say to me.."Why do you bother eating healthy now "?, "your cancer came back so it doesn't work  ".. My answer was..".Obviously my body is  susceptible to cancer so I have to help my body fight it.Maybe if I didn't it would be a lot worse" !!  ..  My family are amazing and keep me strong.. I have amazing Grandkids who know all about my journey and love telling people that their grandma is Irish and she kicked cancers butt.  This alone keeps me positive and strong and I truly believe that being positive goes a long way . 

So nice to read everyone's experience with recurrence. Knowing that I'm not alone with these feelings helps. I too have been staying positive. My husband and I plan little overnight getaways when I'm feelin good!! Stay strong teal sisters!!

I was diagnosed in July 2013, had chemo then debulking then chemo again (carbo-taxol). Was in remission for 18 months, 6 more carbo-taco and recurred after 6 months. Tried trial immunotherapy for 6 treatments,  did not work. Since January have been on another trial drug called Niraparib and my CA-125 has gone down and regular scans every 8 weeks shows disease is stable.
In the meantime I walk daily,  have taken my retirement  (I'm 51), go for acupuncture,  massages, eat well, see a psychologist, etc and living today. I have a 14 year old son and I will do anything or try any trials out there in order to stay alive as long as I can.

Gail xo

hi @Fibi , welcome! You have incredible strength, I can see that from what you've described. I'm glad for you that you've taken retirement and are doing so many things to be well.  I have found since diagnosis that my perspective has changed dramatically. I feel so grateful that I am able to be off work while going through this. I'm a bit older than you, so am thinking what will be the next step in terms of working life. Got to enjoy every day!!!

I was diagnosed In June  2016, I had my attempted debulking surgery in July 2017 however they could only take a tumor out of my stomach so I still have my ovaries. I did Taxol/Carbo and Avastin from Aug to Dec 2016. I was also doing maintenance chemo Avastin from Jan to June 2017 when my occurrence happened in June 2017 so at 6 month :( I'm back on Taxol/Carbo again, I'm still in treatment as we speak.

I was diagnosed at stage 4. Has anyone had a occurrence that has been similar? I get treatment at Credit Valley hospital and see Dr. Butler at PMH as well. Dr. Butler has already told me that I have a 95% chance of relapsing again this time within 5 months. 

@Bishop21 I'm sorry you've had such a difficult time with this. It sure requires an incredible amount of strength. Sending warm vibes your way.

Hello @Bishop21 I am sorry to hear about your recurrence.  Please ask your doctors about clinical trials.  There are drugs being tested that are new and may be able to assist you.  You can go onto the UHN website to look up clinical trials for ovarian cancer as well as Sunnybrook to see what is being done.  The doctors at PMH should be able to answer that.  Please call them.

It’s so nice to have this chat room to read about other’s experiences and know that you’re not alone!  

I was diagnosed in June 2014 had chemo, surgery and more chemo and was in remission as of April 2015.  I had a recurrence in November 2016, so I had chemo for 6 months which didn’t work so started Paclitaxil and Cisplatin for 3 treatments.  This has kept the tumours from growing but has not shrunk them.  This regime has been so hard on me I am taking a break for a little while.  I will be monitored every 6 weeks.  My CA-125 has gone down but is not less than 35.  The CA-125 is accurate only to a certain point because other conditions can cause it to be high.  So Dr’s cannot use this as the only indication of a recurrence which is why they also order CT’s, etc.  Good thing they’re so smart!

I try not to worry about recurrences although that is easier said than done! I have a strong Christian faith which really helps me.  That doesn’t mean I don’t get upset or stressed but it does help a lot.  I was very angry when I found out the last chemo didn’t get rid of the tumours and I’m still working through that!  

Hello @Jeannie.  I already stated this somewhere but please ask your doctor about clinical trials.  These new drugs help with suppressing and treating.  Genetic information is useful as well.  If a person has the BRCA 1/2 gene mutation it can help doctors decide medications.  Ask about that as well if you have not yet.  CA 125 is not a great test as you state.  Inaccurate in many cases.  Not a perfect number.  

Hi @Fibi.  Welcome to OVdialogue.  It seems that in the midst of some really difficult things you are finding ways to really care for yourself.  You have been through a lot of ups and downs with treatment as many other women  have too so the fact that your disease is now stable for almost a year is something. I assume that you are continuing on the Niraparib?  What do you find most helpful about the various things you are doing to care for yourself?  Was it is a difficult decision to retire?

Hi @Bishop21.  Welcome to OVdialogue.  It sounds like you have been in treatment since you were diagnosed - that's hard!  As @CurlyHair has said, you may want to talk to your doctors about clinical trials if they haven't raised it with you yet.  I'd also like to introduce you to @Quiltmama and @PrincessFiona who were also diagnosed at stage 4 and @midcanada who also had partial debulking surgery.  Perhaps communicating with them may be helpful.  How did you/do you deal with the information that the doctor gave you about the chances of another recurrence?

Hi @CurlyHair :). I have asked about clinical trials and there is nothing available to me right now. I also had genetic testing done in 2014 as my oncologist requested it. I was negative as I assumed I would be. There is very little Cancer in my family. We are very fortunate! 
I try to do a lot of reading and research about my Cancer & I try to keep up with all the newest research coming out. I was a Health Records tech prior to retirement so I’m fairly well informed and comfortable with my Dr’s and other health care professionals. :)

Hi @Jeannie.  Pardon me.  You are on top of it.  Good day 

No harm @CurlyHair! I know you meant well. ??

I just wanted to share an update on my current recurrence. I'm now NED!! No signs of metastasis, no tumors and lymph nodes are normal according to my last scan.  My CA125 is now at 11.  I was very happy to hear this news again and I'm feeling really well. It's just so hard to not think about it EVERY day!! How long will this last, how will it come back and can they treat it again!! Trying to just live each day to the fullest but the cancer just creeps back into my thoughts. It's so hard living with this. Glad we have this forum to connect with each other!! 

Congratulations Quiltmama  So happy to hear you are NED. I know it is hard not to think about it returning but you have done really well. I know we try so hard  not to think about it but yes it has the habit of creeping back into our heads  but  you know what, that's okay because we are going to beat this.. We are going to live every day to the fullest and we will keep fighting no matter what happens. Yes this forum is great.. Keep up the good work  . !!!! :)

Congrats Quiltmama.  

Hi @Quiltmama - Congratulations!  That is great news!  You must feel so relieved!  Enjoy that feeling for as long as possible.  I think it is normal to be concerned when the cancer might come back and learning to live with that fear and anxiety can be hard. There are a couple of webinars that we did last year called Fear of Recurrence and Living with Recurrence that you might find helpful.  

The Living with Recurrence webinar has 2 women sharing their stories of how they have coped with multiple recurrences.  Ovarian cancer is sometime referred to as a chronic illness because women can have different periods of remission, recurrence, more treatment and then remission again.  These 2 women talk about how they have managed this process over several years.

Here is the link to the recordings our website:
http://ovariancanada.org/events-support/go-online-for-support/webinar-series

And as you say, and @irishsurvivor,  try to live each day to the fullest when you can and reach out to others if/when you need a boost or can give someone else some encouragement...
 

Thank you Marilyn. I have watched the webinars and did find them helpful. I also registered for the webinar on Nov. 15th. Ovarian Cancer Canada is an excellent source of information and now we have this forum to connect with others!!

Great - thanks @Quiltmama!  Talk to you on November 15.  For those who may not know, Ovarian Cancer Canada is hosting a webinar called "Ovarian Cancer 101" .  Check it out at and register at:  
http://ovariancanada.org/events-support/go-online-for-support/webinar-series

Hi Everyone.  I just has my 3 month CA 125 results come back elevated again.  I have had one recurrence so I am off to the doctor next week for a plan.  I have no idea at this point.  I am surprised because with initial diagnosis and recurrence I had visible symptoms whereas now I feel great.  I have elevated inflammation levels however which I understand do not help and can complicate things. 

I already have a recurrence.  I finished  treatment a month ago and was experiencing some new pain during the end treatment, so the doc ordered a CT much earlier than normal.  Mine has metastasized to the retroperitoneal lymph nodes.  I'm a little frustrated as the clinic I go to would only book me with the radiation oncologist that ordered the CT, and not the gyne oncologist who is the person I think I really need to see to find out my options.  I find the waiting for "proper channels" insanely frustrating.

Hello Pumpkinpi.  Do you not have a GP. The GP would know which doctor is most appropriate.  If that is not available why do you not call your provincial College of Physicians to ask which doctor would be most suitable.  I have called them during my ordeal with questions.  

I forgot to mention that with radiation it seems to indicate localized and that is what is needed for you versus general treatment.

Thanks @CurlyHair!  My GP was the one who suggested I call and see if I could get an appointment with the gyne onc, as I just finished 25 rounds of radiation, which as far as we both know, means I can't have anymore.  It wouldn't be so bad, but the cancer centre is 2+ hours away, so it's a full day endeavour.  At least my husband and I get to spend time together!  Although I would love to go on a date that didn't involve the cancer centre!  Lol!  My appointment is tomorrow, so I'll find out what's up.  Hopefully!  

Hi all, I was diagonsed 2012, age 42.  I had surgery and front line chemo declare NED. recurrent nine months later, extreme fatigue was my symptom. I was back to work three hours a day and would just crash when I got home from work.  Finally called my GP after a couple of weeks and then it was back on the chemo treadmill.  I have been in treatment every year since and have never reached NED status again.  I believe, that my journey has been easier mentally, beacause I haven’t been on the recurrence roller coaster. I’m living with cancer every day.  I try my best to not let it take over my life.  I spend time making memories with my family.  I’m trying to put together a legacy box for my daughter, but it’s hard to prepare for a life without me in it. I ended up in hospital on Friday, I had a pulmonary embolism, and I realized anything can happen at anytime. My husband and I came to the decision that we are going to no longer wait, but do instead.

There's an amazing webinar by Dr Paul Hoskins at the BC Cancer Agency - that contains almost everything you could possibly want to know about recurring ovarian cancer - from a medical perspective...here's the link:
 https://www.youtube.com/watch?v=yL7BflKAYrk

Hi @Tricia415.  You have been through a lot, haven't you?I can't imagine what it has been like being in some form of treatment for so long.  Your comment "I try my best to not let it (cancer) take over my life" says a lot about you in terms of how you have been dealing with it. Amazing and inspiring.  Talking about making memories with your family and a legacy box for your daughter is quite beautiful.  The difficulty as you say, is trying to prepare for a life without you in it. It sounds like the different things you are doing will help in that process.

I'm sorry to hear that you landed in the hospital.  When you say that experience led you and your husband to do and no longer wait - what does that mean?  What are you going to do? 

@resilient1 Thanks for posting this link!

Hi @Marilyn

I mean that my husband and I have been making travel plans for a year or two down the road.  We have taken many family trips over the last five years, but my husband and I want to take a trip by ourselves. I’m now want to take that trip soon, we are going to do a big family vacation. And I’m planning my First Annual Living Wake for April of next year.  We are also just going to do what we want when we can.  

@Tricia415 I'm so sorry that you've been in constant treatment. I've just found out I have platinum resistant cancer, so my mind is spinning, trying to figure out what I can leave behind for my son so that he has something meaningful to hold on to.  Besides all the awesome memories I am determined to keep making.  Do you mind sharing what you are putting in your legacy box for your daughter?  I've read of writing letters for future events.  But I just can't bear to start that, because it's so heartbreaking to imagine not being there.  

@Pumpkinpi
I am writing a journal of our past, with photos.  I have made a baby blanket and hat. I have my earrings and garter belt from my wedding.  I have little notes.  A high school graduation gift and card. I have an app on my phone ‘Record Me Now’ which asks questions and video records your answers. I have requested my family a friends provide stories of me. I bought a box from Michael’s to put it all in.  My husband will give the items to her at the appropriate times. 

@Tricia415  I think it is amazing all the things you are doing for your daughter and for you and your husband.  Have you decided where you are going on your trip?  A friend of mine actually did something similar to the idea of a Living Wake too.  It seemed a little strange at first, but it was a beautiful and joyful event.   It  must take great emotional strength to think about these things, plan and create all these memories and gifts.  How do you do it?  Where do get this strength?  I'm sure it would be helpful to @Pumpkinpi and others if you could share about this.  How do handle the darker days?

Hi @Pumpkinpi.  I am sorry to learn about your recent news.  Are you still in shock?  Has the doctor suggested other drugs that they would like to try?

I can only imagine how you are feeling and the fear and sadness you are feeling as it relates to your son.  @Tricia415 has some wonderful ideas about what she is creating for her daughter.  Maybe when you feel a little stronger, after a little more time to adjust to this latest news, you will be able to think about what you can do for your son.  How old is he?  Is there someone close to you that you could talk to about this and maybe ask for some help?

I have not finished my treatment yet but am already worrying about recurrence! Has anyone seen a naturopath oncologist or done other alternative treatments after their frontline treatment?

Was anyone stage 1c that had a recurrence? 

Hi @Claudia and @KarenMari53 - and everyone - if you have not viewed them already - there are some good recorded webinars on the OCC site. You can access them from the main page: http://ovariancanada.org/home.aspx
Click on "events and support" tab - then select "go online for support" , then click on Webinar series... all of the pre recorded sessions are there. I found them helpful and hopeful!

How are you feeling @Tricia415 and @Pumpkinpi? 

@Flowergirl, I’m tired all the time. Doing a second round of etoposide. Lost my hair again, but my c125 & c15 both came down. Hoping to make it through another summer.

It’s good to read all the positive comments about recurrence. I was diagnosed with stage 3 and have had chemo and debulking surgery followed by more chemo. I’m fine now but because of my age (71) I think I might have a recurrence. I just left a comment on another page asking about recurrence before I found this one, so sorry about repeating myself.

That is ok @Kitty - there is bound to be lots of overlap. 
How are you feeling today @Tricia415 and @Claudia and @Pumpkinpi ?

I am wondering and curious, for those who have experienced or are currently dealing with a recurrence, are you able to compare what it is like - physically and/or emotionally - or share what you are comfortable with - to how it was when you were first diagnosed - thanks in advance.

It’s really difficult to hear that the Cancer is back. I’ve gone through it twice. Both times I had a feeling but to actually hear it from the Dr was so hard! I’ve also been told twice that the chemo isn’t working which is super difficult to hear, as well. I cried in the oncologist’s office which is tough to admit but I think it’s ok to be sad when you hear news like that!  I was down for a while but I have hope again and I’m determined to beat this! 

Hello Jeannie and thank you very much for sharing. Yes, this is all difficult and yes, it is ok to be sad because we are human and have feelings (as my support help has been saying this). And yes, it took a long time for me to recognize that we need to have hope.
 
I went back through the previous chats? Are you still in Saudi Arabia and are you still in treatment at this time?

It's hard to wrap my mind around, but it looks like I'm facing a recurrence. I've been NED for over a year since debulking surgery in Sept 2016. Chemo treatments (3 pre and 18 post) ended just over a year ago, in Feb 2017. I've put a lot of effort into recovery since then - doing yoga, pilates, fitness, counselling, art therapy. I took a great trip in Feb 2018 to celebrate one year of NED. Two weeks after I returned, I started having noticeable symptoms and they continued for the whole month of March - frequent and urgent need to pee; shooting pains in my pelvis; bloating (my pants were tighter); feeling full quicker. I saw my regular doctor last week and she felt something hard in my abdomen. I'm having trouble with bowel movements, and last weekend started having back pain.
I learned today that my blood test showed that the CA125 is at 1,500. My gyne onc ordered a CT scan a week ago, but I have yet to hear anything - unfortunate delays esp due to the easter weekend closures. They say they are rushing things. It's hard to find much comfort in that because this is scary. My mind went to the worst case scenario today when I heard the CA125 number, just like it had two years ago.
Yet somehow, later this afternoon, I was able to feel some lightness and the worry lessened. Perhaps I was able to alter my thoughts a little, and made a decision that it is what it is, and I will just fight like I did the first time. I'm back in warrior mode. How do we find the strength, right? But somehow, we do. Reading your stories here tonight has really helped me begin to prepare for what is coming. It's such a hard journey, but you are doing it. You are inspiring to me, and I hope to beat this again.

@JaneWest  I am sorry to hear that the cancer may have returned.  I am dealing with my second recurrence and the treatment has been working yet again.  Hard to figure.  I feel ok.  My CA125 is still too high but coming down.  I seem to have the problem with ascites and thickening versus hard tumours.  I just try to stay positive and keep going.  I do what I can do and what stick to what I can control.  Try to trust my doctors for what they can do and keep on plugging.  I have positive thoughts for you.  Good luck.  

Hello @JaneWest and @CurlyHair - thank you again for sharing your recent stories....we are thankful for this inspiring supportive network here - wishing you all some comfort for the next few days.

Recurrence was in fact confirmed last week. I ended up going to emergency where they did a CT scan. The very next day, the letter arrived with the scheduled date of CT scan my oncologist had ordered "expedited". The date was set for April 19. Unbelievable. I would have been in agony by then. They've already got me back on hydromorphone for pain, which is working. I see my gyne oncologist tomorrow and they will already have a plan ready. I have no idea what to expect, but imagine it would likely be chemo. My friend just told me of a woman she knows of who has had 12 recurrences of ovarian cancer. Really?!!! wow.

Would anyone care to share the specific type of ovarian cancer you were diagnosed with? I have learned that there are different rates of recurrence and treatment possibilities, depending on which type of OC.

@JaneWest  FYI I have the most common form of ovarian cancer.  Epithelial and have had two recurrences in 3 years.  I am being treated with chemotherapy right now for it.  It seems to be helping and the ascites that had been continually built up has almost gone.  I may be getting olaparib at some point if I can survive.  The ascites is the big problem for me.  Would not wish it on anyone.  Good luck with your treatments.  

Hi @JaneWest and @CurlyHair  Recurrence is always tough.  I've heard some women say that it was harder than when they were fi st diagnosed.  I don't know if you feel that way or not.  I am sorry that you are both back in treatment.

@JaneWest.  Yes there are different types of ovarian cancer and each type can respond differently to different types of treatment.  For example, the most common form of ovarian cancer is called epithelial high grade serous ovarian cancer.  Most women with this type of ovarian cancer are often diagnosed at stage III.  This type of ovarian cancer can be associated with a BRCA mutation more so than others.  Women with BRCA positive disease also have a better response to PARP inhibitors like the drug Olaparib (Lynparza).

For an overview of the different types of ovarian cancer you can go to our website:
http://ovariancanada.org/About-Ovarian-Cancer/Disease-Basics/What-is-ovarian-cancer

If you would like further information, please let me know.  I would be happy to talk to you.

 Hi @JaneWest  I was diagnosed with Stage 111 High Grade Serous Carcinoma in 2012... I had chemo , surgery then chemo after... I was doing fine numbers always  below 13 until Jan 2017.. My numbers went up slightly then 3 mths later they went down again a little.. My oncologist wanted to have a look to see what was going on and sent me for CT scan.. They found a spot.. I had surgery once again in July and I was told they found 5 nodules.Yes my cancer was back.They removed all of them and I was lucky  they were not attached to anything ... I didn't need chemo as they got it all.. So now I am in remission again ... Numbers are great again.. TG.. Stay strong.We just have to keep fighting.. It may come back again but I will never give up... Recurrence is tough but you know what we are tougher ...!!!! I have been referred to the Cancer Genetics and High Risk Program.. 

Hello @irishsurvivor, thank you for posting your update and glad to hear you are feeling ok.
@CurlyHair
@JaneWest
hope you are feeling ok tonight

Thank you ladies. I have just come out of eight days in hospital for a bowel obstruction. I'm feeling much better now but recovering from the obstruction is a slow process, and needs to be carefully monitored, esp as I have not yet started any treatment for recurrence. No ascites shown in the CT scans so I feel fortunate for that. @Marilyn yes, it is true for me that this recurrence diagnosis was far worse than the shock and fear of being initially diagnosed. I'm hearing a different narrative from the doctors now about what my life will look like going forward. Incurable, always have recurrences. That's a hard pill to swallow, and to wrap my head around. How do I talk to my two teenage boys whose lives are just beginning?!  I'm getting there tho, mentally. I am lined up to hopefully begin the Olaparib drug trial in the next two weeks, once all tests confirm my eligibility. I have a hope for us that something exciting will be developed in the next few years, that will allow us to live with this disease longer, and possibly even find a cure! They are continually developing new medications and treatments that are showing promise. I sense an impending excitement around advancements in genetics and cancer treatment. And yes, we need more $$$!

Hi @JaneWest - hope you are feeling ok today, and better each day now that the obstruction is dealt with.

I am feeling better, a small improvement each day. Still not out of the woods, and I'm surprised at how slow this process is. But it is the bowels so that pretty much affects everything else!! I'm so thankful I can start Olaparib finally next week, another new adjustment for the body to make. But an exciting one.  thanks @Flowergirl .  Will talk soon.

Hi I was first diagnosed in 2009 with stage 1 ovarian had surgery and 6 treatments of carbo/taxol. I tested positive for brac2 co in 2013 I had a double mastectomy reconstruction surgery done. In Sept 2017 I was released from the cancer care clinic to my family doctors care . Was doing great till Feb was having constipation went to my doctor has a scan and the cancer had returned in both my lungs and had some enlarged lymph nodes . My ca125 was 271. So was sent back to chemo same as last time was suppose to get 6 only got 2 because I had an allergic reaction .so chemo was stopped my ct scan showed significant reduction in the more and my ca125 had dropped to 37 so I was put on lynparza I take 16 ills a day .I have a few side effect but I can deal with them .I was told today that my ca125 is now 22 very happy about that but I will feel better when I get my scan done . I was very disappointed when it came back .but turned that disappointment in to positivity and take it one day at a time .

Thank you for sharing your story @sharon and you have been through alot also
We hope you will find some good support here on the site.
- wondering are you still on the Lynparza? 

Hi @ Flowergirl I just started taking the lynparza on May 10Th . It's going good so far . Go for my first blood work next Wednesday hoping it's good .

I have had 2 reoccurances and still doing chemo.  I am on Caelyx and it is proving to not work.  My CA 125 levels have doubled in the past month.  What drugs has anyone been on for a third line of defense?  I have had Taxol and Carbo for the first 2 rounds and this last round was just Caelyx.  Thanks!

Hi @sharon - glad to hear your are doing ok on the Lynparza.
Hi @HeidiD - sorry you have had issues with those drugs - has your DR team provided you with some options now?

@Flowergirl I have to move off Caelyx as it is not working to get rid of the cancer.  I am wondering what is typically the next chemo drug that is perscribed...

Hello @HeidiD - sorry to hear you are having issues with those drugs. Not certain that there is a typical answer as it seems treatment varies for everyone according to your condition, perhaps tumor type and response, etc.
Are you on a chemo break now or is the DR team going to try variation or another drug type for you?
I'll also direct message you. 

@HeidiD  I know about cisplatin, another platinum based drug.  I have provided to a USA website that lists drugs available.  Keep in mind there are drugs on this list that have yet to be approved by Health Canada but are available in the USA.  Rucaparib and niraparib.  Olaparib is available.

https://www.cancer.gov/about-cancer/treatment/drugs/ovarian   

Please ask your doctor about the drugs on the list. There are so many out there that may or may not be relevant so I leave it mainly to my doctor.  I do not know enough to form an opinion of one over the other but I have asked her about the list and she is aware of them all of course.  

Good luck.

Hi Sharon,I started on Olaparib three days ago. I was wondering how you are doing on the Lynparza? Have you had any side effects.

Hello everyone.  Dropping into read other comments and tell you I am now receiving Cisplatin with Taxol for recurrence.  Cisplatin is more potent than Carboplatin for me.  Much more tired and a little nausea which I am managing.  I am doing well so far.  Feel good once the first week of chemo goes by.  I hope everyone is ok.  Take care 

@CurlyHair
I am also on Cisplatin with Docetaxel....today is day 15 after my first infusion. 
Day 3 to day 7 were hard and I needed  anti-nausea drugs every 4 hours, both Ondansetron  and Maxeran, plus twice daily Ranitidine.  I could only eat very mild food (white toast, yogurt, ginger infused water) and I struggled to stay hydrated.  Nausea would wake me up also.
After Day 7 all is well...I feel fine.
Quite a change from previous chemo with Carboplatin and Taxel--I had no issues with nausea at all.
I know now to be prepared for my next infusion on Monday.....take the drugs before nausea strikes.

Best of luck to you.

@midcanada
 
Exactly.  Get those anti nausea into you to be safe.  Good luck. 

I am writing to note that with the cisplatin I have had the taste buds change.  This lasts longer than the first week.  It makes everything taste off but thankfully no nausea.  I have to try foods with a bit of flavour to them because bland does not taste good going down if that makes sense.  

Tomorrow I will find out if I am having a reoccurrence. I was diagnosed in Sept 2017 and finished chemo in April. I had clear scans, but my CA-125 went from 6.3 to 60 in about a 6 week period.

Hello @VSC - thank you for sharing your story and it is good they are on top of looking into things for you. Wishing you the best possible outcome for sure.

@Flowergirl I do have a reoccurrence. My lymph nodes have grown and the doctor found cancer plaque during a digital exam. I will start chemo again at the end of the month. My latest ca-125 was 220

Hi @VSC - sorry about the recurrence issues... hope you are feeling ok today.
Will they give you the same chemo drugs as before and how are you managing... do you have an in-person support group?

@Flowergirl - thank you

Thinking of you @VSC and I'll message you

My first bloodwork shows that my WBC took a hard hit. I don't really know what to expect with this treatment and there is a lot of worry for me being knocked down so quickly.

I was diagnosed in sept. 17 and had a radical hysterectomy 9 days later. Needed a second surgery for complications for I didn’t start chemo until Dec.17. 7 rounds of carbo/taxol. When I had my follow up a month after chemo, CA125 had gone from 18 to 260. Scan revealed I had pelvic lymph node and lung Mets. It’s back, stage 4, “incurable”. We did pelvis radiation to try and buy some time. I’m not scared anymore, just sad. I have 4 teenagers and I see the fear in their eyes most days. I’m currently not a candidate for any trial drugs. Genetic testing all came back negative. Now we just wait. Palliative Care is where we are at. Cancer sucks!!! BUT, my family and I are now extremely intentional about everyday. Hug your loves, tell them your heart...let nothing stand between you and those around you!! Carpe Diam. I have a strong faith that brings me peace. Blessings to each of you...it’s a hard road. ??

Hi @VSC  .  Have you had a second treatment yet?  It is an anxious time when you are not really sure how you are going to react to the chemo.  I hope that through the holidays you find some time to relax and enjoy being with family and friends.

Hi @mother42275.  I'm so sorry to hear your news.  It is very sad and must be terribly difficult to see the impact on those around you especially your children.  How did you get over being scared and get to a place of peace?  I suspect that based on your post that your faith has been a part of that, but even so, it is amazing that you seem so calm.  Thank you for sharing your thoughts with us and reminding us to Carpe Diem.  I don't know if you celebrate Christmas but I do hope that the holidays give you the time and opportunity to do all that you suggest - hug your loved ones, share your heart and experience peace and joy even the midst of all that is happening to you.  Thinking of you and all on this site....

sending the love and prayers to you @mother42275 - thank you for sharing your story with us.

@mother42275 and @Marilyn
Mother42275 - as I read and re-read your post I am first struck by words like “stage 4” and “incurable “ and “buy some time” and “Palliative Care”.
Then the emotions "scared", “fear” and “sad”. "Cancer Sucks!" (Amen sister!)
But it is your actions that really stand out for me.
- Wait.
- Intentional Extremely intentional.
- Hug
- Love
- Let nothing stand between
- Seize the day! (Carpe Diem)
- Have (a strong faith that) brings (me peace)
Wow. What an inspirational message. A raw, honest, and powerful expression of the journey you and your family are on. Thank you for sharing your story and your hope and your peace. That is what stands out most for me!
I, too, am declared palliative. I was just last week meeting with a palliative care oncologist - an amazingly positive experience. Palliative is literally the human condition, it is the time of your life between now and your death. We are in a sense, all dying - it is after all a guarantee of our human frailty. However, when you wrap it up in a "diagnosis" it takes on a greater than intended immediacy, I think. 
I, too, am a woman of deep faith. I live in a fluctuating peace and the fear and anxiety that comes into my life now is a tool that I use to point me back into the peace. It does not buffer me from the pain, the fear, the anxiety, but it gives me such an anchor to ride out the storms of my emotions until I come back to rest in the peace.

May the peace and grace and hope that is the Christmas celebration surround you and your family. Many blessings.

@mother42275  Thanks for your inspiration and encouragement.  I am under the care of a palliative Dr. who is quite is amazing! My children are grown, I can't imagine having 4 teenagers in this situation. It is a small consolation that it is not genetic.
I put my hope and trust in Jesus and pray for you and your teens.

@VSC if you look at the recent thread about Liposomal Doxirubicin (Caelyx), we were just discussing the rash/peeling skin effect of Caelyx that happened for a few of us after the third cycle. Otherwise for me it was mostly nausea (maybe carboplatin related) and fatigue. Hope you get neither side effect!

Did you find the support group out of BCCA in Vancouver? For “Women with Metastatic Cancer” - ominous name, but kind and lots of positive energy! 

@jen_k @Marilyn

@VSC I am sorry to hear that you are having nausea - that can be one of the worst side effects of chemo. Hopefully you have called the chemo unit and asked about treatment? I know the aim is for NO nausea, and there are lots of treatments available - pretreatment with aprepitant, and dexamethasone, ondasetron, olanzepine after chemo have worked for me when I had nausea with chemo. There are others too if those don’t work. Good luck finding the solution that works for you:-) j

@jen_k

@VSC  My oncologist prescribed Dexamethasone and Ondasetron to be taken 1/2 hour before chemo and the Ondasetron 12 hrs after the first dose. Both the drugs morning and night for 2 to 3 days afterward. These two drugs are used to prevent nausea from occurring. I’ve only had one round of the carbo/dox so it’s probably too soon to really know but so far no nausea.

@Teddybear

Hi @JaneWest. I was diagnosed Nov 2017 3C serous. Had 11hr debulking surgery (large mass and lots of spread). Had an ileostomy and 6 rounds front line chemo. Was NED in April, had ileostomy reversal and given the all clear. Dec 2018, CA125 started climbing and CT in Jan showed reoccurrence and a tumour on my liver. So back to chemo and I am now 1/2 thru second round. So far, so good, as responding and CA125 trending down. CT next month of tumour to see if its shrinking. Was devastated by first reoccurrence (more than initial diagnosis) but have hope seeing others battle back again and again. Approaching this like a chronic disease for me is helping. Remaining stable and symptom free is paramount for me now. 

Hi @adfab I’m new to the community as my mom was just diagnosed with stage 2 (unofficial) as we still waiting for lab results.
She has completed her first debulking surgery and they have managed to remove all visual lesions. She is currently in recovery and awaiting chemo (6 sessions to follow).
She also had an Ileostomy.  We’ve been a bit surprised by a need for a stoma and so feel like we could really use some advice by those who have experience. 

Thanks so much for all the sharing. I was NED in February 2023 and now have my first recurrence 7 months later. I’m trying to live one day at a time since I do feel really healthy but I can’t stop thinking about those cancer cells growing. Treatment will start once I have symptoms outside of my Ca125 marker which is at 184 now. When do you know you have enough symptoms to warrant getting chemo?

@powderpuff  I am saddened to hear of your recurrence.  I, myself, cannot answer your question as I am surmising you are HGSC.  If that is not correct, kindly let me know.  I am going to let the HGSC ladies weigh in.  As for symptoms warranting chemo, I am unsure if it weighs on that solely or if your CA125 level has a play in it as well.  I would write down symptoms and days they occur to see if you have any commonalities or irregularities to report to your team. What did your team say as far as next steps with your recurrence?
  Thank you ladies who can comment and help or give some guidance to our fellow Teal Sister.

I don’t know if I’m HGSC. My dr doesn’t take the ca125 marker as an indicator to start treatment. Just sucks that I have to feel sicker before I get treatment. As far as next steps it’s to wait for more symptoms and continue to live my life. I’ve been telling myself I’m not my disease and trying not to let it run my life. My emotions go in waves and trying to be positive. 

@powderpuff  Do you mean you don't know what type of Ovarian Cancet you have?  If you don't it ia time you asked. It is difficult to navigate yourself and for anyone to comment on if you don't know the type. I have LGSC and it is treated differently than high grade and some of the rarer ones.
If you don't mind me asking  and sharing what symptoms do you have? How are you feeling in general?
  It is difficult to navigate or handle your emotions because I feel you are sitting in unknowns. Once you know more  you will have better skills to ask the questions you need.  I was the one that inquired about a trial drug for my recurrence.  Unfortunately it didn't work for me.  I know where I sit now and know there isn't much more i van chase with my type.  I have dealt and still deal with my emotions around it.  I am positive you will feel better once you have some questions answered.
  Hang in there!

@powderpuff and @Strongwoman
I have read your conversation and my heart reaches out to both of you. It has been a while since I have participated in this community and I wanted to respond to you.
I have HGSOC (High-Grade Serous Ovarian Carcinoma.) It is by far the most common type of Ovarian Cancer and I agree with you @Strongwoman - it is very helpful to know what your type is as it will help you understand what is and is not available in terms of treatment.
I was diagnosed almost 10 years ago now! I am currently in my 4th recurrence and have been in treatment for it since January 2022 and am going strong, praise be to God. If you want a few more details, it is in my profile. 
Each oncologist/medical centre have their own protocols and standards of treatment. And it ranges across the country and around the world. CA125 is not a reliable diagnostic tool for Ovarian Cancer, but it can be a red flag. I know of no doctor who will treat based on CA125 levels alone. I have a sensitive CA125 marker, but it my doctors use symptoms and evidence from CT scans to diagnose and treat a recurrence. So ask your oncologist for imaging when you discuss your disease type.
Anyway, I wanted to encourage you both. You are your own best advocate. Look for the answers you need. and as always, this community is here to support you.

Thank you @UnPickNot.
I am curious though....you mentioned yiu had not participated for awhile but decided to for this post. Are you looking for more support? Are you wanting to help and encourage? Whatever the reason, I am thankful you have and hope to see you post or participate in the Teal Thursday chats.
Take care

@UnPickNot thanks so much for your comments - I actually feel relief hearing that you have had 4 recurrences and are feeling strong.  I also appreciate hearing that CA 125 is an unreliable marker and that no Dr. would start treatment based on that alone - huge relief.  It's just that they make a big deal out of it during treatment so that drove up my anxiety.  May I ask are you working through your treatments?

@Strongwoman - I have taken your advice and have called to see what kind of cancer I have.  I don't have any symptoms yet - feel better than I ever have so is it just a waiting game until symptoms start?   Thanks again for your comments 

@UnPickNot - I have had a recent CT scan that shows lesions on my liver of about 6cm x 6cm x 2cm but my oncologist is holding off on treatment until I have more symptoms as she wants to protect my bone marrow

@powderpuff  Yes, I am so thankful you are going to find out what type you have.  I feel it will alleviate a lot of the unknowns for you.  It is also wonderful that you are not experiencing any symptoms of note. Take it and go do all the things you want to do!  
As for your CT scan, are they monitoring it and waiting to see if any significant changes in CA 125, symptoms and/or CT scan?  I think it is wonderful your oncologist is thinking of you and your bone marrow as well.  That is so considerate of them. 
  You go enjoy now and let those worries go the wayside.  Life is yours to LIVE!!

Baaahhh!!  Home now from seeing my Oncologist for our monthly meet. To find out she is ill (how dare she eh? ;)  and had her replacement. This one, I do not prefer but thought ok, give her a second chance.  Nope. I will stick with my main one from here on out.  Was not up to date on my stuff.  Asked me if I knew what my options were or if they had been explored if the cancer is progressing but didn't word it that way.  I had no idea whether she was speaking of my cancer itself or my hydroureteronephrosis.  It was the former. To be entertained, I asked if she had any suggestions.....she didn't.  I let her know that I had a toxicity to MEK inhibitors, radiation is off the table and that there were no options left. She inquired about trials and I mentioned that the trials are mainly based on MEK inhibitors for my type of cancer (LGSC). That if disease was progressing than so be it.  She then said and in a kind way, "So, you know more than me."  I did answer "yes" to that question.
   Basically I found out nothing from her.  I have dropped more weight so I have been flagged if I have lost more than 10% of my body weight in a short period of time.  I have actually lost 15% of my body weight. My serum creatinine has dropped to 49 from 62 and now I wait for my CA 125 level to come back.  I will not be surprised to see it higher than usual. Based on my symptoms, weight loss and other findings.  So, stay tuned and I will update you as soon as I know.
  As for my mental state, I am good.  I solely want to know what is happening so I know how fast I have to work on my projects and squeeze activities in while I feel good. 
  Take care my friends!

@powderpuff To work or not to work. Isn’t that the question!!!
i couldn’t work during my first recurrence treatment. My next 2 recurrences happened during CoVid shutdown and I was off work because of redundancy. When I did go back to work, I was diagnosed with recurrence within 3 months. I continued to work this time with a flexible schedule and accommodations. I left work on stress leave (manager-induced!) and finally “retired “ in June. The situation at work wasn’t going to improve and I wasn’t going to add that stress back into my life. And on this one ast Monday I was approached by a former colleague to consider a position that she was developing with me in mind! So here I am, nearly 10 years after diagnosis and living with growing recurrent cancer in weekly chemo, and someone values me enough, my skills etc. to create a job just for me with full autonomy and flexibility . Now I have to decide if I want to go back to work. 

@Strongwoman I read your comment about your progression in your liver. Oddly enough, on the exact same day I was having the exact same conversation with my oncologist! My lesion is not as big but it is growing. What to do?
I was struck by your calmness and it resonated with me as well. Knowing fills me with peace. Not knowing makes my anxiety fly. Here for you, sister. 

@UnPickNot  
  Thank you.  I am curious though. You mentioned liver to me.  Did I state that somewhere else in a post or are you experiencing similar symptoms as myself?
  Yes, I am calm and I know in my heart these changes are not for the good. Will have to wait for the medical evidence to show the same.
  Thank you for reaching out 

@Strongwoman - I’m saddened to hear about your last appointment. You are in my thoughts. 

@powderpuff  Good morning, I am checking in from our last posts.  Have you been able to find out what type of ovarian cancer you have?  How are things regarding your symptoms?  Any changes or still same?
How are you feeling in general these days.  I recall you being a little upset and sitting in some unknowns which is tough.  How are things now?
  Take care of you and rest. 

@UnPickNot  Checking in to see how things are going with you.  How is working going?  Is this working out for you and being able to manage with your health at the same time? If it is, you are awesome.  It can be difficult to do but sounds like they are willing to work with you to accommodate your needs.
  Drop us a line when you have time. 
Take care

@Strongwoman. I have the HGSC type. Symptoms wise I eat less, have cramping on my pelvic floor and sometimes feeling tired. I go for another ct scan Dec 12. I’ve called my dr about these symptoms but we haven’t started treatment yet. How are you feeling?

@powderpuff  Good.  I am thankful that you know the type you have.  It will be easier when discussing options/looking things up and/or asking for advice on this site.  
  Have you had any intervention of any sort as of yet? Or are they waiting for that CT scan in December to determine your treatment options?
  As for me, thank you for asking, it is very kind.  I spoke with my Palliative doctor this week and she met me at Hospice as I was there and she was coming in for other patients.  We discussed my latest creatinine clearance value, symptoms, treatment options and meds.  She is thinking the same way I am and so we added in a 3m long lasting Hydromorph mid day and will wait for next blood work to see what it says. If it is trending downwards again then we know what we are looking at.  It is all leaning towards kidney and since my left one is the one doing all the work, it will more than likely lean me towards requiring a Nephrostomy.  I have put this off as long as I could but if it will alleviate the pain in my back currently, I am all for it.  I have to let her know today how the increased med is going and honestly, it isn't doing a lot.  I am sore and am much worse at night.  I have resigned myself to the fact of the nephrostomy, not willing to share any of this with my family as of yet and am processing constantly.  I want them all to not worry so much for the next month and then we will go from there.  Thank you for asking.
Take care

@Strongwoman and @powderpuff thank you for sharing your updates. I, too, am working through the weeds of progressing disease, with challenging treatment choices managing my comfort levels and side effects.. I’m grateful that while our circumstances are unique, we share enough that I am not alone. There is such comfort in community. I have had a good week. I intentionally framed it as a “vacation “ from cancer and treatment. Next week back to reality and decision making and treatment and well, the Ick. 

@UnPickNot  No, you are not in this alone at all.  Many of us go through similar things but the timing can be different.  I am thankful you have reached out and have found a sense of community here.  It is what this site was designed for.  I saw on TV news the other night that in the Breast Cancer community, someone has designed an app that is a ChatBot to answer questions about having breast cancer.  I sat on that for awhile and I hope that it never comes to our site.  There is something to be said about talking to a live person who has gone through similar events commenting and supporting another along.  I find it very impersonal to talk to a ChatBot about what I, myself, might be going through.  Not to mention the possibility to create new friendships along the way.
  Enjoy every moment of your "vacation" and tackle the "Ick" as it comes along.
Take care! 

@UnPickNot   Good Morning.  It has been a bit since you last posted and you were waiting on results and to make decisions re: treatment.  I am curious as to where things stand today and how you are doing with it all.  If you could update us and let us in to see how you are doing, I feel it would be great support for you and anyone who may be undergoing a similar journey.  Hoping you will post soon. Will be continuing to think of you.
Take care  <3

@Strongwoman, it has been a while. Shanks for checking in.

@UnPickNot  Thank you for posting your update.  It is inspiring to see how long you have lived with this disease and a glimpse of your journey.  It sounds like you have worked through a lot of things over the years. I don't think it would be easy. Some of it comes with time, or at least, that is my belief.  The red devil eh? You ladies who do go on it, are inspiring. Sounds like you have learned to live despite what is going on which is admirable.  You are also doing your research, preparing for what the "next" discussion may be instead of waiting which is smart.  Immunotherapy sounds like you would "welcome" it.   
Yes, the roller coaster ride, we are all on.  All of us on different parts of it at different times. 
I also agree that the "decision fatigue is real".  We can sometimes fatigue of making the decisions when it comes to treatment and our journeys.  Tire of the "what ifs" and "what next" that sometimes it is nice to live in the present, meaning each and every day, and enjoying it for what it is.  
Thank you for sharing and imparting your knowledge and journey on this forum.  I am happy when I see ladies like you posting that have not been on in a long while.  It provides HOPE, for many and some may glean some knowledge that may assist themselves in their own journeys.  I hope to see you posting again in the near future. 
Take care in the meantime and I will be looking to see what your CT scan on Tuesday discovers for you.  
 <3 

So I’m  going into round 4 of treatment on April 3rd. My latest ct scan showed the lesions are shrinking and ca 125 is dropping. I’m not thrilled with my lack of energy.  I am able to work a few hours each day but I do require nap times. My partner is so supportive through this.  After my next treatment God willing I’ll get a break as we plan a fun trip to Europe. Then it’s on to more decisions about part inhibitors

@powderpuff  4 rounds of treatment. How many in each round?  Sounds promising that the scan is showing both the lesions shrinking and the CA 125 level is dropping.  Encouragement is what I think.  
I bet you are not thrilled with your lack of energy as I don't believe any of us are.  If naps are required to get through your day, then nap away for now.  Glad to hear you have such a supportive partner and have been able to maintain some sort of work during it all.  Inspiring.  If they don't offer a break, can you ask for one?  I wish for you to plan that trip to Europe and that it becomes a reality for you.  Parp inhibitors....lots of info on that, on this site.  How do you feel about going on one of those?  
Thank you for sharing your journey with us.   <3

@Strongwoman. I have one session per month. I’m also on the red devil combined with carboplatin. I’m also going through a mild depression as I try to cope with this recurrence. Trying to find the little miracles that come my way every day. 

Ohh @powderpuff  It is tough accepting a recurrence and all that goes with it.....mentally, emotionally and physically.  I am saddened to hear that you are navigating a depression as well.  Some days it is tough to find that silver lining or gleaning of hope when the day looks so dark.  Sounds like you are doing what you can to find them though which is part of the battle.  You have recognized and acknowledged it which is a big step to recovering from it. All in due time.  It is a grieving process as we accept our recurrence....anticipatory grief.  Allow yourself the time to heal and be kind to yourself.  
We are all here for you whenever you need us in whatever way.
Thank you for sharing and hope you continue to do so in your own way and time.
Take care of you.  <3